PANS+ Scotland were delighted to be invited to speak at the PANS & PANDAS: A BRIDGE BETWEEN SCIENCE, HEALTHCARE, AND EUROPEAN POLICIES, held last week at the European Parliament in Brussels.
This conference brought together politicians, clinicians, support organisations and families to share their work, and campaign for better support for those with PANS and PANDAS across Europe.
While Scotland is not in the EU, our recent work on the UN Convention on the Rights of the Child applies across much of Europe, with many EU countries having either ratified the convention, or incorporated it into law, so we shared in the hope that it may also be useful to others.
The video of the conference can be accessed on You Tube at PANS & PANDAS: A Bridge Between Science, Healthcare and European Policie (English Language)
The timing to view the different presentations is below:
| Time | Speaker |
|---|---|
| 0:01:00 | SALVATORE DE MEO, MEP and Conference sponsor |
| 0:07:00 | OLIVER VARHELYI, European Commissioner for Health |
| 0:16:00 | ROBERTA METSOLA, President of the European Parliament |
| 0:22:00 | PETRONELA STOIAN, ministry of health – romania |
| 0:27:00 | LALLI FABRIDI, president of the pans pandas bge parents’ association – italy |
| 0:43:45 | MARCELLO GEMMATO, undersecretary of the ministry of health – italy (video) |
| 0:45:40 | SABRINA ALBERINI, lawyer of the parents’ association pans pandas bge |
| 1:01:50 | ALESSANDRA LOCATELLI, minister for disabilities – italy (video) |
| 1:05:49 | NICOLE MINARDI, standard-bearer of the italian republic. appeal from young patients |
| 1:09:08 | Video |
| 1:19:06 | ALBERTO SPALICE, md (italy) professor of pediatrics; director of the pediatrics unit, department of maternal and child health and urogynecological sciences, sapienza university of rome “pans syndrome: an italian perspective” |
| 1:32:50 | DRITAN AGALLIU, phd (usa) professor of neurology, columbia university irving medical center “mechanisms of brain pathology in pandas/pans: lessons from animal models and human studies” |
| 1:50:00 | COTICA CRISTINA GEORGIANA, md (romania) psychiatrist, co-founder of dr cotica clinic “from first contact to multidisciplinary care: the psychiatrist’s role in pans/pandas in the context of neurodevelopmental disorders across the lifespan — a clinical perspective from romania” |
| 2:01:16 | CLAUDIA BROGNA, md, phd (italy) adjunct professor; pediatric neurologist, fondazione policlinico gemelli irccs; università cattolica del sacro cuore (ucsc) “mental and neurodevelopmental disorders and pans/pandas syndrome: the thin boundary” |
| 2:17:45 | PARISA HAJJARI ZHAO, md (sweden) pediatrician, doctorate student, gothenburg university/sahlgrenska university clinic, gothenburg “clinical survey of a swedish pans cohort” |
| 2:28:20 | TIM UBHI, md (uk) consultant paediatrician and clinical director, the london pans clinic “pans/pandas – remodeling our approach to children with neuropsychiatric disease” |
| 2:43:25 | CHRISTOPHER PITTENGER, md, phd (usa) mears & jameson professor of psychiatry; professor of neuroscience and psychology; deputy chair for translational research, department of psychiatry; director, yale ocd research clinic “autoantibodies in pans and their effects on brain function” |
| 2:58:02 | JENNIFER FRANKOVICH, md, ms (usa) clinical professor of pediatrics – allergy, immunology, rheumatology; director, stanford immune behavioral health clinic & research program, stanford university school of medicine “evidence for inflammation in pans” |
| 3:22:28 | DIMITAR KOLEV, md, phd (bulgaria) associate professor of neurology, south-west university neofit rilski, blagoevgrad “neuroimaging markers supporting differential diagnosis in children with pans, pandas and asd” |
| 3:41:08 | MICHAEL NUNNS, phd (uk) senior research fellow, isca evidence, university of exeter medical school “pans/pandas unveiled: headline findings from an evidence and gap map” |
| 3:56:30 | KATY GORDON-SMITH, md (uk) msc nutritional medicine, rnutr; director of nutrition, the london pans clinic “a nutritional medicine approach to optimizing recovery in pans/pandas” |
| 4:29:04 | NICOLE KIEN, lawyer – european health law and patients’ rights |
| 4:41:39 | VINCENZO CASAREGOLA, head of institutional relations, pans pandas bge parents’ association |
| 4:49:18 | ELENA STRATULAT, pans/pandas sindrom community representative (romania) |
| 4:55:01 | VICTORIA ALEJANDRA DEVEREUX, asociación genitori pans pandas bge (spain) |
| 4:59:00 | VICKY BURFORD, ceo and KATY HINDSON, health and policy lead, pans pandas uk |
| 5:10:50 | RENÉ BLANCHARD AKRE, chair of the board, expand – the european immuno-neuropsychiatric association |
| 5:20:40 | GILLIAN MATHEWSON, chair of trustees, pans+ scotland (remote participation) |
| 5:28:20 | NEIL GILSON “legend of the lakes: a journey to raise awareness of pans/pandas” (uk) |
| 5:36:40 | PATRICIA REGAN, PANS PANDAS Foundation Ireland |
| 5:41:30 | TONE HELENE BERGSET RØKENES, bergen (norway) |
Unfortunately the video does not show presentations of the speakers – but for anyone interested in our presentation, you can view it below.